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Summary
Summary
When parents learn that their child has autism, the news can be devastating, even paralyzing. Meanwhile, the first 12 months after diagnosis are the most important when it comes to intervention.
As a parent of a child with autism, Nancy D. Wiseman knows firsthand how difficult it can be to unravel complex issues, discover what questions to ask, and find effective treatments. In this landmark guide, Wiseman offers both compassionate insight and a wealth of information for diagnoses from Asperger's to classic autism.
Day by day, week by week, month by month, The First Year: Autism Spectrum Disorders walks parents through a wide range of medical and lifestyle concerns, helps them navigate the healthcare, insurance, and educational systems, and ensures the best possible outcome for their child.
Author Notes
Nancy D. Wiseman is founder and president of First Signs, Inc., a national nonprofit organization whose mission is to educate parents and professionals about the early signs of autism and related disorders. She is the mother of thirteen-year-old Sarah, who was diagnosed with autism at age two. They live in Merrimac, Massachusetts.
Reviews (1)
Library Journal Review
Verdict: A comprehensive guide for parents coping with their child's recent autism spectrum diagnosis. Strongly recommended for consumer health collections. Background: Wiseman's excellent hands-on overview of the first-year following a child's diagnosis is based on her experience as president of First Signs, Inc., a national organization she founded to educate parents and professionals about the early signs of autism syndromes. Like Bryan Jepson in Changing the Course of Autism, Wiseman tries to stretch the understanding of autism from purely neurological/behavioral impairments to encompass "the entire body, including the brain, gut, and immune and metabolic systems." The book lays out day-by day, month-by-month guidelines for emotional acceptance and handling the details of home care, special education, insurance and medical costs, and negotiating with medical agencies and social bureaucracies.-James Swanton, Harlem Hosp. Lib., New York (c) Copyright 2010. Library Journals LLC, a wholly owned subsidiary of Media Source, Inc. No redistribution permitted.
Table of Contents
| Foreword | p. xiii |
| Introduction | p. xvii |
| Day 1 Learning: What Are Autism Spectrum Disorders? | p. 1 |
| Living: Affirming the Diagnosis | p. 15 |
| Day 2 Learning: Are You Doubting the Diagnosis or Denying It? | p. 19 |
| Living: Getting a Quick Start and a Second Opinion | p. 24 |
| Day 3 Learning: The Top Ten Most Essential Actions | p. 33 |
| Living: Living with Autism, an Olympic Challenge | p. 37 |
| Day 4 Learning: Is Recovery Possible? | p. 40 |
| Living: Understanding, Accepting, and Embracing the Diagnosis | p. 47 |
| Day 5 Learning: Getting Organized, Informed, and Connected | p. 50 |
| Living: Managing the Business of Recovery | p. 57 |
| Day 6 Learning: Navigating Long Waiting Lists | p. 62 |
| Living: Begin to Assemble Your "A" Team | p. 64 |
| Day 7 Learning: Defining Your Role and Your Family's Role | p. 79 |
| Living: The Journey Ahead | p. 84 |
| First-Week Milestone | p. 87 |
| Week 2 Learning: Diagnosis Is Not Enough | p. 89 |
| Living: Understanding Your Child's Individual Profile | p. 94 |
| Week 3 Learning: Autism's Underlying Biomedical Factors | p. 101 |
| Living: Finding the Right Biomedical Specialist | p. 105 |
| Week 4 Learning: Early Intervention | p. 110 |
| Living: How to Access Early Intervention Services | p. 115 |
| First-Month Milestone | p. 121 |
| Month 2 Learning: Know Your Rights; Know Your Insurance | p. 123 |
| Living: The Financials: Planning Ahead | p. 144 |
| Month 3 Learning: Taking a Balanced, Integrated Approach to Intervention | p. 154 |
| Living: Getting to Know the Treatments Available | p. 160 |
| Month 4 Learning: Making Observations and Understanding What They Mean | p. 188 |
| Living: An Example of Integrated Therapy | p. 193 |
| Month 5 Learning: Understanding Your Child's Educational Needs | p. 203 |
| Living: Finding the Appropriate School Program | p. 210 |
| Month 6 Learning: Preparing for the Educational Planning Process: Getting Your Ducks in a Row | p. 214 |
| Living: Navigating the Public School System | p. 217 |
| Half-Year Milestone | p. 231 |
| Month 7 Learning: When You're Not Getting What You Need from Your School District | p. 233 |
| Living: Learning How to Advocate for Your Child | p. 239 |
| Month 8 Learning: Identifying Coexisting Conditions | p. 254 |
| Living: More about Peeling Away the Layers | p. 258 |
| Month 9 Learning: Feeling Isolated, Staying Positive | p. 265 |
| Living: Finding Resources and Building Your Support System | p. 270 |
| Month 10 Learning: Refining Your Child's Treatments | p. 276 |
| Living: Assessing Your Professional Team and Using It Wisely | p. 282 |
| Month 11 Learning: Defining and Measuring Success: Assessing Your Mission and Goals | p. 286 |
| Living: More about Goals: Is There a Difference Between Your Stated Goals and Your "Real" Goals? | p. 290 |
| Month 12 Learning: Finding Balance, Knowing You Have Made a Difference | p. 292 |
| Living: Feeling Empowered, Finding Joy and Humor in Your Life | p. 296 |
| Appendix 1 The Early Indicators of Autism | p. 303 |
| Appendix 2 A Strawman Treatment Development Process | p. 309 |
| Glossary | p. 313 |
| Notes | p. 321 |
| Acknowledgments | p. 331 |
| Index | p. 335 |
