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Summary
Summary
When a professional states, "Your child has Autism Spectrum Disorder (ASD)", it is enough to make your whole world fall apart. What does it mean to be on the autism spectrum? How will this affect your child's life, your life, the life of your family, and others you interact with? What sorts of medications, therapies, and alternative methods are used to help manage the disorder? What are the financial and legal ramifications? How will this affect schooling, your spiritual growth, and everyday life? These are just a few of the questions that will rapidly cross your mind.
Caring for Autism: Practical Advice from a Parent and Physician delves into all these questions and more. As the father of a daughter with ASD and as a trained psychiatrist who specializes in ASD, Dr. Michael A. Ellis provides a holistic view of what comes after diagnosis. In user-friendly tones, he answers the most commonly asked questions about what it's actually like to live with ASD, what medications and therapies are available, and the global impact it has on the child's environment. With the help of his wife, Lori Layton Ellis, to provide a mother's perspective, Dr. Ellis shares personal stories of their 10-year journey in order to provide insight and support for anyone - patient, parent, caregiver - traversing the difficulties of autism.
Author Notes
Dr. Michael A. Ellis was born and raised in Vero Beach, FL. He attended medical school at Nova Southeastern School of Osteopathic Medicine and completed his residency and fellowship at the Medical College of Georgia. He is a child and adolescent psychiatrist and expert in treating Autism Spectrum Disorder. He seeks to educate the parents of children with ASD to help both the parents and the children navigate the medical and lifestyle challenges on this life-long journey. He has a wife and 3 children and the oldest child, currently 13 years old, has autism spectrum disorder.
Reviews (1)
Library Journal Review
Do you want to know what it's like to live with autism spectrum disorder (ASD) as a part of your daily family life? Or how you can you help yourself, your child with ASD, and the rest of your family to thrive while handling this multifaceted disorder? As the title suggests, this book is filled with practical advice from not only a physician trained in ASD but one who has a child with ASD at home. Ellis knows firsthand of what he speaks when advising parents about difficulties with family life, diagnosis, treatment choices, education, and parenting. The author also includes a chapter by his wife discussing the mother's point of view of raising three children and the challenges presented when the oldest has ASD. Other topics in this comprehensive and accessible look at all aspects of having a child with ASD and the effect on the entire family include ASD diagnosis, causes, medication, alternative medicine, education, therapies, and long-term planning. VERDICT A must-read for those who have a child diagnosed with ASD, their families, and caregivers. Suitable for any library with parenting and autism collections.-Lisa Jordan, Johnson Cty. Lib., Overland Park, KS © Copyright 2018. Library Journals LLC, a wholly owned subsidiary of Media Source, Inc. No redistribution permitted.
Table of Contents
Acknowledgments | p. xiii |
Contributor | p. xv |
Chapter 1 A Father's Perspective on Autism | p. 1 |
My Child's Diagnosis | p. 2 |
Why Did This Happen to My Child? | p. 4 |
Lessons Learned | p. 5 |
Chapter 2 A Mother's Perspective on Autism | p. 11 |
Chapter 3 Assessment and Diagnosis of Autism Spectrum Disorder | p. 17 |
History of Autism | p. 19 |
Symptoms of ASD | p. 21 |
Diagnoses that Mimic ASD | p. 28 |
Common Comorbid Disorders | p. 30 |
Screening and Diagnostic Instruments | p. 33 |
Medical Workup of Your Child | p. 35 |
Other Referrals Needed | p. 37 |
Chapter 4 What Causes Autism? | p. 39 |
Possible Causes of Autism | p. 41 |
Brain Differences in ASD | p. 42 |
Genetic Causes | p. 43 |
Environmental Causes | p. 44 |
OBGYN Recommendations | p. 56 |
Conclusion | p. 59 |
Chapter 5 Autism's Effect on the Whole Family | p. 63 |
Impact of ASD on the Family | p. 64 |
Parenting Efficacy (Am I a Good Parent?) | p. 66 |
Parenting Stress | p. 67 |
Effect of ASD on Parents' Health | p. 70 |
Hardships of Parenting a Child with ASD | p. 73 |
How the Environment Affects the Child with ASD | p. 74 |
ASD's Impact on the Marriage | p. 75 |
ASD's Impact on Siblings | p. 76 |
The Cost of ASD | p. 77 |
Quality of Life and Well-Being | p. 79 |
What Should I Do? | p. 80 |
Coping and Acceptance | p. 81 |
Social Support | p. 82 |
Interventions/Therapies | p. 86 |
Chapter 6 Psychopharmacology: Should I Use Medications for My Child? | p. 89 |
What Symptoms Can Be Treated with Medications? | p. 94 |
Stimulants | p. 94 |
Nonstimulants | p. 104 |
Other Medications that May Be Used Off-Label for ADHD | p. 108 |
Atypical (Second-Generation) Antipsychotic Medications | p. 111 |
Selective Serotonin Reuptake Inhibitors | p. 121 |
Antiepileptic (Anticonvulsant) Drugs | p. 124 |
Glutamatergic and Gamma-Aminobutyric Acidergic Agents | p. 125 |
Cholinergic Agents | p. 126 |
Oxytocin | p. 126 |
Other Agents | p. 126 |
Sleep | p. 127 |
Pharmacogenetic Testing | p. 129 |
Conclusion | p. 130 |
Chapter 7 Complementary and Alternative Medicine Therapies | p. 133 |
Gluten-Free/Casein-Free Diet | p. 136 |
Omega-3 Fatty Acids | p. 137 |
Vitamin B6 | p. 138 |
Artificial Food Colors | p. 139 |
Hyperbaric Oxygen Therapy | p. 139 |
Chemical Chelation | p. 140 |
Secretin | p. 140 |
Melatonin | p. 140 |
Cannabis | p. 141 |
Tips on the Use of CAM | p. 142 |
Chapter 8 Non-Medication Therapies for ASD | p. 147 |
Applied Behavior Analysis | p. 148 |
Early Intensive Behavioral Intervention | p. 151 |
Developmental Relationship-Based Approaches | p. 154 |
Comprehensive Treatment Models for Early Intervention for Preschool Children | p. 155 |
Parent Training | p. 156 |
Social Skills Groups | p. 158 |
TEACCH Program | p. 158 |
Speech Therapy | p. 159 |
General Recommendations | p. 160 |
Chapter 9 The Educational System and Autism Spectrum Disorder | p. 163 |
Disciplinary Action | p. 171 |
11 Important Points for Individualized Education Programs | p. 173 |
Predictors of Your Child's Educational Success | p. 176 |
Chapter 10 Long-Term Planning and Legal Issues | p. 177 |
Financial Planning | p. 178 |
Health Insurance | p. 179 |
Medicaid Waiver Programs | p. 180 |
Guardianship | p. 181 |
Special Needs Trust | p. 184 |
SSI and Social Security Disability Insurance/Disabled Adult Child Benefits (SSDI) | p. 185 |
Other Legal Issues | p. 189 |
Letter of Intent | p. 189 |
Common Mistakes to Avoid | p. 189 |
Your Adult Child and Vocational Issues | p. 192 |
Chapter 11 Stages of Grief, Spirituality, and Religion | p. 195 |
Meaning-Making Theory of Grief | p. 200 |
Religion in the Individual with ASD | p. 205 |
Chapter 12 Navigating the Journey | p. 209 |
About the Author | p. 211 |
Index | p. 213 |