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Material Type | Library | Call Number | Suggested Age | Status |
|---|---|---|---|---|
| Book | Searching... Cabell County Public Library | 616.8522 MAR | Adult | Searching... Unknown |
| Book | Searching... Hurricane Public Library | 616.8522 MAR | Adult | Searching... Unknown |
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Summary
Summary
Provides parents with the tools to support children who experience medical trauma
Afraid of the Doctor is the first book written for parents to equip them with the knowledge and skills to support their children through medical challenges on a day-to-day basis, and specifically with medical trauma--experiences in healthcare that can profoundly affect a child's response and willingness to even go to the doctor. The challenge of medical trauma is often under-recognized and overlooked in the healthcare system, leaving parents to learn about it and manage it on their own. This book helps parents understand medical trauma and learn strategies to reduce and even prevent it, empowering them to better care for their child's emotional and physical health.
Afraid of the Doctor integrates character stories throughout the book to illustrate the signs and symptoms of medical trauma and the roles parents and caregivers play in supporting their child through medical challenges. Readers will find twelve distinct strategies they can implement to help prevent and reduce medical trauma and otherwise support their child while facing medical interventions or a chronic condition. With compassion and empathy, Meghan Marsac and Melissa Hogan offer parents the tools they need to choose the strategies that will work best for their children and their families.
Author Notes
Melissa J. Hogan, JD, is a parent to a child with a rare genetic disease who has faced countless surgeries and specialists and, as a result, medical trauma.
Meghan L. Marsac, PhD, is a pediatric psychologist with expertise in helping children and families adjust to and deal with medical conditions.
Reviews (1)
Library Journal Review
In this book addressing an oft-ignored subgroup (parents of children who experience medical trauma), Marsac and Hogan write from both personal and professional experience. Hogan, a nurse and mother of a child with Hunter syndrome (a rare genetic condition), and Marsac, a pediatric psychologist, are uniquely qualified to write this manual. Forty percent of children in the United States struggle with a chronic health problem, and these children are also at increased risk for emotional and behavioral problems. Marsac and Hogan guide parents through researching their child's condition; choosing what information to share with their child (and then helping them deal with the information); organizing and managing medical treatment; making medical decisions (often with too little or too much information); helping their child deal with medical procedures and new medications; and advocating for their child. Each chapter includes questions for reflection and practical actions to take. VERDICT When parents find themselves dealing with medical trauma during their child's growing-up years, this book will be a helpful tool to navigate challenging and frightening situations.
Table of Contents
| Foreword | p. ix |
| Preface | p. xiii |
| Acknowledgments | p. xix |
| How to Use This Book | p. xxiii |
| Part 1 The Reality Of Medical Trauma | |
| 1 Where Love Meets Medicine | p. 2 |
| 2 Parenting through Medical Challenges | p. 9 |
| 3 The Medical Journey | p. 16 |
| Part 2 Medical Trauma 101 | |
| 4 What Exactly Is Medical Trauma? | p. 22 |
| 5 How Do I Know if My Child Has Medical Trauma? | p. 28 |
| 6 What Isn't Medical Trauma? | p. 37 |
| 7 Medical Sprints versus Medical Marathons | p. 42 |
| 8 Your Family and the Health Care System | p. 49 |
| Part 3 Who Are You? | |
| 9 You Are a Person, Then a Parent | p. 58 |
| 10 You Are a Caregiver | p. 63 |
| 11 You Are the Leader of Your Child's Medical Team | p. 68 |
| 12 You Are a C.O.A.C.H. | p. 75 |
| Part 4 Strategies For Preventing And Reducing Medical Trauma | |
| 13 General Strategies: Parenting Children with Medical Conditions | p. 86 |
| 14 Planning Ahead: Planning Makes ... Better | p. 91 |
| 15 Communication: Let's Talk about It | p. 97 |
| 16 Consistency: Knowing What to Expect | p. 104 |
| 17 Behavior Charts: Not Bribing, Rewarding | p. 108 |
| 18 Additional Visual Supports: Creative Preparation | p. 114 |
| 19 Desensitization: Let's Get Used to It | p. 122 |
| 20 Medical Play: Children Learn through Play | p. 128 |
| 21 Adapting the Environment: Make Yourself at Home | p. 133 |
| 22 Timing: 6:00 a.m. or 6:00 p.m.? | p. 140 |
| 23 Distraction: Squirrel! | p. 145 |
| 24 Reinforcement: High Five! | p. 150 |
| 25 Body Control: Mind-Body Connection | p. 154 |
| 26 Switching Strategies: If at First You Don't Succeed, Try Again | p. 163 |
| Part 5 Special Populations | |
| 27 Children with Cognitive Impairment | p. 166 |
| 28 Children Who Are Nonverbal or Who Have Communication Needs | p. 173 |
| 29 Very Young Children | p. 176 |
| Part 6 Can Parents Develop Medical Trauma Too? | |
| 30 Medical Trauma in Parents | p. 182 |
| 31 What's "Wrong" with Me? | p. 188 |
| 32 How Can I Support Myself? | p. 193 |
| Part 7 Wrapping Up | |
| 33 Seeking More Help | p. 200 |
| 34 Epilogue | p. 205 |
| Additional Resources | p. 209 |
| Notes | p. 211 |
| Bibliography | p. 221 |
| Index | p. 229 |
| About the Authors | p. 235 |
